关爱原发性免疫缺陷病患者,让缺憾的生命拥有同样的爱与尊重
Every Life Matters: Love and Respect for Primary Immunodeficiency Patients

中国唯一一个原发性免疫缺陷患者组织

PID加油宝贝成立于2017年

The only PID patient organization in China

PID CARE CHINA was established in 2017.

为患者提供畅所欲言的交流平台

通过微信、QQ、公众号等平台,为大家提供咨询交流.

Provide patients with an open communication platform,

Facilitating consultations and interactions through platforms such as WeChat Group Chats, QQ, and Wechat offical account..

中国可能有超过200万PIDs患者

98%以上的患者还未确诊,中国PID知识宣传迫在眉睫.

China potentially has over 2 million individuals with Primary Immunodeficiency (PID)

Over 98% of these cases remain undiagnosed. There is a pressing need for comprehensive PID awareness and education in China

2017年2月8日,PID加油宝贝关爱中心正式成立。转眼之间,我们已经走过第九个年头。

这九年,是陪伴孩子们成长的九年,也是与无数家庭彼此支持、共同学习、一起走过不易道路的九年。

On February 8th, 2017, the PID Baby Care Center was officially established. In the blink of an eye, we have now entered our ninth year.

These nine years have been a time of growing alongside the children, and also a time of mutual support, learning, and journeying through challenging paths with countless families.

看见未见 爱「愈」无缺,在这里,我们学会了接纳与爱——PID家庭心理支持工作坊圆满落幕

在盛夏的舟山,海风轻拂,阳光正好。

PID加油宝贝关爱中心携手来自全国10个省份、16个城市的近四十位原发性免疫缺陷PID)患者及家庭,共同迎来了一场别开生面的温暖聚会。


In the midsummer of Zhoushan, the sea breeze gently brushes by, and the sunshine is just right.

PID Jiayou Baobei Care Center, together with nearly 40 primary immunodeficiency (PID) patients and their families from 16 cities across 10 provinces in China, gathered for a unique and heartwarming event.

2025年4月12日至13日,一场聚焦中国原发性免疫缺陷病(Primary Immunodeficiency Diseases, 简称PIDs)患者、融合国际视野与本土实践经验的高规格医患交流盛会——“首届国际原发性免疫缺陷病经验分享及全国患者倡导大会”在北京圆满落幕。

On April 12-13, 2025, a high-level doctor-patient exchange event focused on Chinese Primary Immunodeficiency Diseases (PIDs) patients, integrating international perspectives and local practical experience - the "First International Conference on Sharing Primary Immunodeficiency Disease Experience and National Patient Advocacy" - was successfully concluded in Beijing.

【最新记录片发布】原发性免疫缺陷与继发性免疫缺陷

IPOPI(国际原发性免疫缺陷患者联盟)致力于帮助更多人更好地了解免疫缺陷问题。因此,我们非常兴奋地大家介绍这部最新的专注于原发性和继发性免疫缺陷的小型纪录片。我们已经为中国观众翻译好了中文字幕。

[Latest Documentary Release] Primary and Secondary Immunodeficiency

真情发布【呼唤丙球】-记录中国原发性免疫缺陷病患者使用人免疫球蛋白替代治疗的挑战- PID加油宝贝关爱中心倾情发布倡导视频

Recording the Challenge of Using Human Immunoglobulin Replacement Therapy for PID Patients in China - PID CARE CHINA Release Advocacy Video

我们邀请您与我们一同观看这个真挚而感人的视频,分享这个视频。我们深信,通过努力,我们可以为PID患者带去更多的关怀和支持。

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爱的力量可以改变世界

The power of love can change the world.